Funding Breakthrough Research to Cure ALD
We Can Will Cure ALD
Our son, William, was diagnosed with X-Linked Adrenoleukodystrophy (ALD) when he was 1 month old. William’s mom (Taylor) was also diagnosed shortly after this. Our family has decided to take action and start a foundation to fund research for this condition that impacts 1-in-17,000 children and adults all over the world. We plan to provide grants to top research hospitals and universities in order to combat this disease on behalf of our son, my wife, and all the other families impacted globally. Our vision is that in 5-10 years, more treatment options will be available to this growing population and we believe this is achievable through thoughtful funding.
Our Story
Fundraising Progress
We currently have an angel donor that will match contributions for the next $540,000 in donations
Our Supported Organizations
Our Focus Areas
New Treatments for Cerebral ALD
Despite ALD affecting 1-in-17,000 individuals worldwide, treatment options are limited and there is no cure. We aim to fund research to develop breakthrough treatments for pediatric and adult patients with Cerebral ALD. Until recent gene therapy discoveries, a bone marrow transplant was the only available treatment for Cerebral ALD.
New Treatments for AMN
AMN (Adrenomyeloneuropathy) occurs when ALD manifests in the spinal cord leading to mobility challenges. This form of ALD affects both men and women. We aim to support research focused on developing new treatments for this form of ALD, which currently has no cure.
Prognosis and Outcome Prediction
There is currently no way to predict how ALD will manifest (if at all). Our goal is to fund research that uses biomarkers and data science to predict outcomes. This will support efforts to develop cures and take timely action to prevent severe outcomes.